Ambulatory oxygen

Annieb1
Annieb1 Forum Participant Posts: 4
edited March 2016 in Motorhomes #1

I may have to start using oxygen for a medical condition and would like to hear from anyone who has experience of using it in a motorhome particularly abroad. Do you take the cylinder or buy a portable compressor for example? I am aware of issues such as
notifying insurance, displaying stickers etc

Comments

  • JVB66
    JVB66 Forum Participant Posts: 22,892
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    edited March 2016 #2

    Are you talking about a nebulizer? (compressor) as a neighbour of ours always uses one abroad

  • QFour
    QFour Forum Participant Posts: 442
    edited March 2016 #3

    If you have to use an Oxygen Cylinder you cannot use a compressor to refill it. They are filled with oxygen and not air. Father of a guy I work with has them. they call him the space man when he is walking round with the cylinder on his back.

    No idea how you get Oxygen in other countries but sure the NHS must have come across it with people wanting to go on holiday. You may find your biggest problem is insurance. We found the club do a very good yearly one but don't know if they would cover you
    if you need oxygen all the while.

  • bandgirl
    bandgirl Forum Participant Posts: 440
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    edited March 2016 #4

    People on oxygen at home have an electric machine that draws in air from the room and extracts oxygen from it then delivers a regulated flow via tube/mask. Not sure what the machine is called. They also have a back up oxygen cylinder in case of power supply.
    Both are hefty pieces of equipment.

  • Annieb1
    Annieb1 Forum Participant Posts: 4
    edited March 2016 #5

    I already use a nebuliser but will need oxygen Not 24/7 but as required when breathless. It is provided in small cylinders with valves etc. I just wondered how people find it using it in a motorhome and getting refills etc abroad or is it better to use a
    portable compressor type concentrator. These  are an alternative way of using oxygen but are expensive to buy. They are not used to refill cylinders as suggested above. large machines are only if on it 24/7. I am aware of the insurance issues etc but just
    wanted to hear from anyone who actually used oxygen in any guise in their motorhome. 

  • QFour
    QFour Forum Participant Posts: 442
    edited March 2016 #6

    You can buy the small bottles on Amazon which also means they are available on the continent. Not the cheapest way of buying but you could if you were heading to France order them from Amazon.FR and get them delivered to site or drop box. You would of course
    have to set up an account.

  • Qashqai66
    Qashqai66 Forum Participant Posts: 551
    edited March 2016 #7

    I regret to say that many of these posts reveal a plethora of ignorance on the subject of oxygen therapy.  I have half an hour of oxygen at 6 litres per minute every morning and evening in order to reduce the symptoms of chronic migraine.  I use a portable oxygen concentrator which is not - as stated by bandgirl - a hefty piece of equipment.  It is about the size of a lady's handbag and weighs about 2 kg.  It runs from mains, a rechargeable battery or a car 12 volt supply.  My machine goes with me wherever I go and it has never crossed my mind to mention the matter to insurers other than the fact that the machine itself is insured.  At a cost of £2,500 it needs to be.  The drawback of most portable concentrators is their very small capacity, some as low as 2 litres per minute.  Mine is an Inogenone G2 which has the advantage of going all the way to 6 litres per minute.

  • Annieb1
    Annieb1 Forum Participant Posts: 4
    edited March 2016 #8

    Thank you so much Qashqai. Just the answer I was hoping for. I was trying to be civil regarding the replies from non users trying to be helpful,  my cylinders give 2.5 hours of oxygen which I need for a lung condition but not constantly just when  out of
    breath. They are provided by the nhs so I would not be buying from amazon despite kind suggestions. I was advised by the supplier to notify insurers if the cylinders are transported because they are a risk if the vehicle goes up in flames. I presume a concentrator
    would not cause the same hazard.  I am considering buying a portable concentrator as seen in various medical mags because cylinders will take up so much room in our vw camper.  Your information is very useful as I do not know anyone with experience of them
    or using one in a motorhome. I will pursue it further. I would need one with your sort of capacity. Thanks again. 

  • Qashqai66
    Qashqai66 Forum Participant Posts: 551
    edited March 2016 #9

    My pleasure Annieb 1,  It might help you to know that the whole question of buying your own concentrator is a minefield with pitfalls for the unwary!  I researched long and hard before finding the Inogen One G2 which is the only one which does 6 litrs per
    minute.  The two main suppliers are Intermedical and The Oxygen Store.  With hindsight I could have done better in beating the price down.  I had am email from Intermedical a week or so ago offering me a G2 at around £500 below list price so now I am kicking
    myself!  I do hope you manage to find the right machine.  If I can help any further then please follow up on this thread and I will get back to you.  I think I am right in saying that I am not allowed to put my email address on here.

  • Qashqai66
    Qashqai66 Forum Participant Posts: 551
    edited March 2016 #10

    Sorry I forgot to say that there is no hazard with a concentrator as it simply separates the gases and compresses the O2 with each pulse.  It matches itself to your breathing.  There is nothing under compression when it is not in use.  All the airlines allow
    those who need them to use them in flight.

  • DavidKlyne
    DavidKlyne Club Member Posts: 13,857 ✭✭✭
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    edited March 2016 #11

    Annieb 1

    Its good to know that you are determined to enjoy your European travel. Just a thought for you. Are there any charities/support groups for your particular condition. If so they might know of arrangements for sourcing new supplies whilst you are travelling,
    there may even be arrangements already in place?

    Davd

  • bandgirl
    bandgirl Forum Participant Posts: 440
    100 Comments
    edited March 2016 #12

    Qashquai, I can only say from my experience of what my Mum had at home for 48 hours before she died last August.  It was a hefty piece of equipment.  I didn't profess to be an expert on home oxygen therapy.  My experience is of over 36 years as a registered
    nurse in an acute hospital setting, in surgical wards, which is entirely different.

  • Qashqai66
    Qashqai66 Forum Participant Posts: 551
    edited March 2016 #13

    Yes you are right - totally different.  I do hope the O2 helped your Mum in her last hours.  As far as I know all the portable concentrators, which are very small, are made in America where they are widely used.  Our NHS supply the large "hospital" type
    ones for patients at home.  If you want a portable one you have to do as I did and buy it yourself.

  • bandgirl
    bandgirl Forum Participant Posts: 440
    100 Comments
    edited March 2016 #14

    Thank you, Qashqai. Mum found it a comfort to have, although it didn't really help as she was already too poorly. At least she was at home.

  • Photo4x4
    Photo4x4 Forum Participant Posts: 28
    edited December 2021 #15

    Hello

    I'm looking for an update on this. Please see my posting here: https://www.caravanclub.co.uk/club-together/discussions/welcome-hobby-talk/caravan-motorhome-chat/caravanning-with-an-oxygen-concentrator/

    I'm looking to contact someone who has used a portable oxygen concentrator whilst caravanning. The machines are not cheap so I'd like some unbiased opinions from people who have actually used them.

     

    Thanks.

     

    KH

  • Wherenext
    Wherenext Club Member Posts: 10,597 ✭✭✭
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    edited December 2021 #16

    Photo4x4 have a look at Qashqai's comments on page 1 of this thread.

    If you need more details it may be worth while writing to Rowena asking her if she can contact Qashqai to see if you two can email each other. Unfortunately this system doesn't support a PM function.

  • Tinwheeler
    Tinwheeler Forum Participant Posts: 23,137 ✭✭✭
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    edited December 2021 #17

    Q hasn’t been active here for over a year. I hope all is well.

    Good idea, WN. 👍🏻

  • Photo4x4
    Photo4x4 Forum Participant Posts: 28
    edited December 2021 #18

    Hello Anieb1

    My wife is in the same situation and we were wondering how you got on.

    KH

  • Tinwheeler
    Tinwheeler Forum Participant Posts: 23,137 ✭✭✭
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    edited December 2021 #19

    I don’t think Annie has visited the forum since 2016, Photo. She writes site reviews so is still out and about👍🏻