Thyroid Issues

Pippah45
Pippah45 Forum Participant Posts: 2,452
1000 Comments
edited August 2017 in General Chat #1

As a person with under active thyroid issues I have learnt a lot about the condition and I thought some others might be interested in this campaign.  It's not for everyone but it has certainly helped me.  

https://www.change.org/p/itt-campaign-group-improve-thyroid-treatment-for-millions-of-people-stop-the-withdrawal-of-t3

 

Comments

  • Sianelen
    Sianelen Forum Participant Posts: 85
    edited August 2017 #2

    I also have an under active thyroid and take T3, thank you for bringing this campaign to my attention. I had no idea that T3 may be withdrawn.

  • Pippah45
    Pippah45 Forum Participant Posts: 2,452
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    edited August 2017 #3

    It's pretty scary news for those who need it!  My GPs won't talk of anything except levothyroxine that I feel like death on!  I have had a lot of help from Thyroid Patient Advocacy group their knowledge is astonishing although maybe not surprising as most have thyroid problems.  Please feel free to pass on the link.  smile

  • Pippah45
    Pippah45 Forum Participant Posts: 2,452
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    edited August 2017 #4

    It seems the bbc is taking it up now. 

    https://www.facebook.com/thyroidpet...xvjbJWzSr1rXGz9vBEaRBEj_KSKJ9VYDUUh4&fref=nf#

    and if Trust me I'm a doctor is on tonight it's about thyroid.  

  • DavidKlyne
    DavidKlyne Club Member Posts: 13,857 ✭✭✭
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    edited August 2017 #5

    Pippah

    Shouldn't this be in General Chat?

    David

  • Pippah45
    Pippah45 Forum Participant Posts: 2,452
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    edited August 2017 #6

    If you think so David?  Out of my depth a bit! 

  • DavidKlyne
    DavidKlyne Club Member Posts: 13,857 ✭✭✭
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    edited August 2017 #7

    Pippah

    I just think more people will see it here. I have passed the link onto Margaret who has a Thyroid condition and has been taking medication for many years and it is regularly monitored. I am not sure she has suffered in the same way as others but she takes so many medications it might be hard to tell!!!

    David

  • Pippah45
    Pippah45 Forum Participant Posts: 2,452
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    edited August 2017 #8

    Thank you David - I was unsure where to put it especially as I don't often get down as far as General Chat never mind below!  There are so many people out the suffering thyroid issues and most GPs seem to treat us as though it's in our heads!  Plus the NHS guidelines are quite restrictive and getting worse it seems with budget cuts.  

  • DavidKlyne
    DavidKlyne Club Member Posts: 13,857 ✭✭✭
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    edited August 2017 #9

    Margaret was diagnosed many years ago, in fact around the time when our children were born. She has always had regular blood tests and medication adjusted as required so it seems she has been well looked after. It was her thyroid condition which allowed her to get free prescriptions and she only found that out when a girl in the chemists told her she was entitled to them.

    David

  • Pippah45
    Pippah45 Forum Participant Posts: 2,452
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    edited August 2017 #10

    Free prescriptions is a useful perk!  I hope Margaret discovered that perk early on!    I wasn't diagnosed till they were free to me anyway!  undecided